Monday, October 5, 2009

How's everyone out there?

Haven't written in a couple of weeks. Hard to believe that fall is here and we'll be celebrating Christmas before we know it.

Did another round of Avastin last Wednesday. Had a great chat with one of my doctors regarding the plan as to how long I'm going to be on the Avastin (assuming that things continue to do well). He had a great analogy to really emphasize that we must continue down this path. He told my wife, Tasha, prior to his discussion with me that he was going to use some "guy" analogies. He told me that although the Cancer army has retreated and my army has advanced quite a bit, it's not yet time to start celebrating victory as there are many snipers out there waiting for me to put my guard down. Just like that, I knew that I still have to many more steps to take to ensure that I win the fight. They want to continue doing the Avastin and VP-16 treatment until February when it will all be reviewed.

One of the ongoing issues that we're (and many other Canadians) are losing is getting the government to set up a more personal medical coverage system. Might sound insane but in my world it makes a lot of sense. I can understand and respect that they can't cover everything out there. It's unfortunate that they don't have some style with respect to experimental treatments. Maybe have a trial time with the patient that states if this experimental drug is showing positive results after 3 months, they will step in to help out. Why should anyone have to deal with the financial stress on top of the emotional and physical stress of fighting to save your life? Believe me, it's not fun at all!!

I've mentioned before that until this problem is taken care of, anyone and everyone should look into covering themselves financially through Critical Illness insurance. Too take the financial stress out of your battle is a huge relief and allows you to invest all of your energy into fighting the real battle - THE BATTLE TO STAY ALIVE!

You may ask why I didn't have this myself when I was initally diagnosed in 1997. First and most important reason; I was a young 24 year old pilot who always thought that stuff like this would "never happen to me" as so many others in our society think. Second reason; it didn't exist yet in Canada. Please do yourself a favour and talk to your financial or insurance consultant about this and see if you can qualify for it. The odds of using it is greater than using your life and disability. Once the logic of it is explained to you properly, I feel confident you'll realize how to avoid going through what I have been financially.

Was on CTV news today to say thank you to everyone out there that has helped us by donating to "Ryan's Path". Here's the link:

http://calgary.ctv.ca/servlet/an/local/CTVNews/20091005/CGY_tumour_avastin_091005/20091005/?hub=CalgaryHome

I have always felt confident in winning this battle, however, there has also been many times that "doubt" has crawled into my brain and reminded me that there is no guarantee to anything in life. What this has made me realize is that although we know that we have been given the gift of life (and all of the challenges that are part of the deal), we must realize that we will pass on and accept that that is part of the deal. That is something that has really become an eye opener for me and I can say "thank you" to cancer for making me realize this. We live each day and each day goes by like a blink; each week, each month and each year go by like a blink. We are told to "stop and smell the flowers", yet that rarely happens.

Take some time each day to say "thank you" for being here. It has definitely helped me and will continue to help me as every day goes by.

Peace, love and happiness to everyone.

3 comments:

Vic & The Wearmouths said...

Hey Ryan! Just wanted to fill you in an boo-hoo about drugs with you; ha! Treatment for my aplastic anemia does not seem to be working so I may have to go back in for re-treatment next month. Hopefully my bone marrow kicks back into production in the next few weeks though so I'm hopeful! The immunosuppressant I am on (to stop my immune system from killing off my blood production) is called Cyclosporene, and even though it is the worldwide known treatment for Aplastic Anemia, it's not covered for this disease. How screwed up is that?! Anyway, I remember feeling ripped off for you that Avistan wasn't covered and now, albeit much smaller amounts, I have the same smaller problem! Ridiculous...also, I now know what you meant when you were harping on Scott and I to get critical illness coverage...."we'll never need it though" was what we thought. Fools! Ha! Anyway, glad to hear you are kicking ass Ryan, I hope I can email you my same ass-kicking results asap!! xo Vicki W

Tyson said...

I just read the cover story on Believe (http://www.cancer.ca/Alberta-NWT/About%20us/AB-Publications/~/media/CCS/Alberta/Files%20List/English%20files%20heading/pdf%20not%20in%20publications%20section/niw_ab_Believe-web-fall09.ashx).

It's great to see your smiling face. You bring inspiration and hope to those that need it most, and at the time they need it most.

Keep on keeping on,

Tyson & Tanja.

Calhoun said...

Ryan very cool blog. I am here when you need me.

Michael